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Autism

(from the Autism Society of America)

Fact Sheet


Autism is one of five disorders coming under the umbrella of Pervasive Developmental Disorders (PDD), a category of neurological disorders characterized by "severe and pervasive impairment in several areas of development," including social interaction and communications skills (DSM-IV-TR).

The five disorders under PDD are

  • Autistic Disorder

  • Asperger's Disorder

  • Childhood Disintegrative Disorder (CDD)

  • Rett Syndrome

  • PDD-Not Otherwise Specified (PDD-NOS)

Each of these disorders has specific diagnostic criteria as outlined by the American Psychiatric Association (APA) in its Diagnostic & Statistical Manual of Mental Disorders (DSM-IV-TR).

Autism typically appears during the first three years of life. The result of a neurological disorder that affects the functioning of the brain, autism and its associated behaviors have been estimated to occur in 2 to 6 per 1,000 births (Centers for Disease Control and Prevention, 2003). Autism is four times more prevalent in boys than girls and knows no racial, ethnic, or social boundaries. Family income, lifestyle, and educational levels do not affect the chance of autism's occurrence.

Autism is a spectrum disorder. The symptoms and characteristics of autism can present themselves in a wide variety of combinations, from mild to severe. Although autism is defined by a certain set of behaviors, children and adults can exhibit any combination of the behaviors in any degree of severity. Two children, both with the same diagnosis, can act very differently from one another and have varying skills.

Every person with autism is an individual, and like all individuals, has a unique personality and combination of characteristics. Some individuals mildly affected may exhibit only slight delays in language and greater challenges with social interactions. The person may have difficulty initiating and/or maintaining a conversation. Communication is often described as talking at others (for example, monologue on a favorite subject that continues despite attempts by others to interject comments).

People with autism process and respond to information in unique ways. In some cases, aggressive and/or self-injurious behavior may be present. Persons with autism may also exhibit some of the following traits.

  • Insistence on sameness; resistance to change

  • Difficulty in expressing needs; uses gestures or pointing instead of words

  • Repeating words or phrases in place of normal, responsive language

  • Laughing, crying, showing distress for reasons not apparent to others

  • Prefers to be alone; aloof manner

  • Tantrums

  • Difficulty in mixing with others

  • May not want to cuddle or be cuddled

  • Little or no eye contact

  • Unresponsive to normal teaching methods

  • Sustained odd play

  • Spins objects

  • Inappropriate attachments to objects

  • Apparent over-sensitivity or under-sensitivity to pain

  • No real fears of danger

  • Noticeable physical over-activity or extreme under-activity

  • Uneven gross/fine motor skills

  • Not responsive to verbal cues; acts as if deaf although hearing tests in normal range.

One of the most devastating myths about autistic children is that they cannot show affection. While sensory stimulation is processed differently in some children with autism, they can and do give affection. But it may require patience on a parent's part to accept and give love in the child's terms.

Helpful Information:

For most of us, the integration of our senses helps us to understand what we are experiencing. For example, our senses of touch, smell and taste work together in the experience of eating a ripe peach: the feel of the peach fuzz as we pick it up, its sweet smell as we bring it to our mouth, and the juices running down our face as we take a bite. For children with autism, sensory integration problems are common. Their senses may be over-or under-active. The fuzz on the peach may actually be experienced as painful; the smell may make the child gag. Some children with autism are particularly sensitive to sound, finding even the most ordinary daily noises painful. Many professionals feel that some of the typical autism behaviors are actually a result of sensory integration difficulties.

There are no medical tests for diagnosing autism. An accurate diagnosis must be based on observation of the individual's communication, behavior, and developmental levels. However, because many of the behaviors associated with autism are shared by other disorders, various medical tests may be ordered to rule out or identify other possible causes of the symptoms being exhibited.

Research indicates that early diagnosis is associated with dramatically better outcomes for individuals with autism. The earlier a child is diagnosed, the earlier the child can begin benefiting from one of the many specialized intervention approaches.

As part of a well-baby/well-child visit, your child's doctor should do a "developmental screening" asking specific questions about your baby's progress. The National Institute of Child Health and Human Development (NICHD) lists these five behaviors that signal further evaluation is warranted:

  • Does not babble or coo by 12 months

  • Does not gesture (point, wave, grasp) by 12 months

  • Does not say single words by 16 months

  • Does not say two-word phrases on his or her own by 24 months

  • Has any loss of any language or social skill at any age.

Having any of these five "red flags" does not mean your child has autism, but because the characteristics of the disorder vary so much, a child should have further evaluations by a multidisciplinary team that may include a neurologist, psychologist, developmental pediatrician, speech/language therapist, learning consultant, or other professionals knowledgeable about autism.

While there is no one behavioral or communications test that can detect autism, several screening instruments have been developed that are now used in diagnosing autism.

1. CARS rating system (Childhood Autism Rating Scale), developed by Eric Schopler in the early 1970s, is based on observed behavior. Using a 15-point scale, professionals evaluate a child's relationship to people, body use, adaptation to change, listening response, and verbal communication.

2. The Checklist for Autism in Toddlers (CHAT) is used to screen for autism at 18 months of age. It was developed by Simon Baron-Cohen in the early 1990s to see if autism could be detected in children as young as 18 months. The screening tool uses a short questionnaire with two sections, one prepared by the parents, the other by the child's family doctor or pediatrician.

3. The Autism Screening Questionnaire is a 40 item screening scale that has been used with children four and older to help evaluate communication skills and social functioning.

4. The Screening Test for Autism in Two-Year Olds, being developed by Wendy Stone at Vanderbilt, uses direct observations to study behavioral features in children under two. She has identified three skills areas - play, motor imitation, and joint attention - that seem to indicate autism.

Whether you or your child's pediatrician is the first to suspect autism, your child will need to be referred to someone who specializes in diagnosing autism spectrum disorders. This may be a developmental pediatrician, a psychiatrist or psychologist. Other professionals may be included who are better able to observe and test your child in specific areas.

This multidisciplinary assessment team may include some or all of the following professionals. They may also be involved in treatment programs.

  • Developmental pediatrician - Treats health problems of children with developmental delays.

  • Child psychiatrist - A medical doctor who may be involved in the initial diagnosis; can prescribe medication and provide help in behavior, emotional adjustment and social relationships

  • Clinical psychologist - Specializes in understanding the nature and impact of developmental disabilities including autism spectrum disorders. May perform psychological and assessment tests and may help with behavior modification and social skills training.

  • Occupational therapist - Focuses on practical, self-help skills that will aid in daily living such as dressing, eating; may work on sensory integration, coordination of movement, and fine motor skills.

  • Physical therapist - Helps to improve the use of bones, muscles, joints, and nerves to develop muscle strength, coordination and motor skills.

  • Speech/language therapist - Involved in the improvement of communication skills including speech and language.

  • Social Worker - May provide counseling services or act as case manager helping to arrange services.

Resources:

Autism Society of Georgia

Autism Society of America - Northeast Georgia Chapter

Autism Society of America

Autism Spectrum Disorders (National Institutes of Mental Health)

Autism/PDD Network

Cure Autism Now





 

 
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